Sunday, January 17, 2010

Keagan #15

For those who have been praying for Keagan, here's the Reader's Digest version of what's going on with my 9 year old nephew (as I understand it).

A month or so ago, Keagan started having some fairly severe headaches. About that time he also started having some trouble with his eyes. As most people would, we assumed he might be needing glasses. The problems continued to increase, to the point where he was seeing double frequently and normal levels of light were painful to him. Apparently, Keagan had already had a recent eye exam, so my sister took him to the pediatrician this past Monday. When the dr. looked in his eyes, he immediately said Keagan needed to see an opthamologist and get in for a cat scan. The opthamologist confirmed this on Tuesday morning and said that Keagan's right eye was protruding about 6mm farther forward than his left. This would seem to indicate that something was behind the eye pushing it out. He went in for his cat scan and the doctors saw that there was a cyst on his petuitary gland. Wednesday morning he went in for an MRI and we waited for the results. Friday morning the doctor called my sister at work and said she needed to get Keagan out of school and take him to the hospital immediately for a spinal tap. When they arrived, she was told that Keagan had multiple grey areas in his brain that were "irregular". Apparently the myelin sheath surrounding the nerve endings in his brain is sloughing off. For the moment they are treating this with steroids, but they are waiting on test results from Mayo Clinic to verify the actual problem. At this point, doctors think it is probably one of 3 things...
1. A.D.E.M. (acute disseminated encephalomyelitis) which is rare and only 6-10 people a year are diagnosed with it in the United States. He is not presenting with enough of the symptoms to know if that's what it is, but that is what they are treating him for at the moment.
2. M.S. - Equally rare because he is so young for an onset of MS.
3. Cerebral Palsy- Even more rare because he hasn't shown symptoms prior to now.

We should hear back from Mayo by next weekend, and Keagan is scheduled for another MRI at the end of this month. This morning Keagan was back in the ER with a severe migraine, and when they admitted him they found that his heart rate was half of what it should have been. They don't really know why that happened, but once he stabilized they sent him back home.

We would appreciate all your prayers as the doctors seek to determine what is going on with his little body. Thank you in advance!

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